United Network for Organ Sharing - (UNOS)
“United Network for Organ Sharing (UNOS) is the private, non-profit organization that manages the nation's organ transplant system under contract with the federal government.”
Donate Life America (DLA)
“Donate Life America, formerly the Coalition on Donation, was founded by the transplant community in 1992 to educate the public about organ, eye and tissue donation and avoid duplication of effort.”
American Association of Tissue Banks (AATB)
"The American Association of Tissue Banks (AATB) is a professional, non-profit, scientific and educational organization. It is the only national tissue banking organization in the United States, and its membership totals more than 100 accredited tissue banks and 1,000 individual members. These banks recover tissue from more than 30,000 donors and distribute in excess of two million allografts for more than one million tissue transplants performed annually in the U.S. The overwhelming majority of the human tissue distributed for these transplants comes from AATB-accredited tissue banks.”
Eye Bank Association of America (EBAA)
“The EBAA champions the restoration of sight through core services to its members which advance donation, transplantation and research in their communities and throughout the world.”
American Academy of Neurology (AAN)
The Association of Organ Procurement Organizations (AOPO) strongly supports strict adherence to the American Academy of Neurology (AAN) guideline. We recognize that there have been previous flaws in the practice of the declaration of brain death, and we are advocating for the consistent application of the AAN criteria. Clinical practice needs to continually strive for improvement; we endorse this addition to our resources for the practice of medicine and look forward to ongoing improvement in the clinical criteria for the declaration of death by neurologic criteria. To access the guideline, please click here www.aan.com/guidelines. For media information, visit www.aan.com/go/pressroom.
Association for Multicultural Affairs in Transplantation (AMAT)
“Multicultural organization who serves health and transplant professionals by providing leadership in a national capacity on matters of diversity facing the transplant industry.”
American Society of Transplant Surgeons (ASTS)
“The American Society of Transplant Surgeons is comprised of over 1500 transplant surgeons, physicians, scientists, advanced transplant providers and allied health professionals dedicated to excellence in transplantation surgery through education and research with respect to all aspects of organ donation and transplantation so as to save lives and enhance the quality of life of patients with end stage organ failure.”
American Society of Transplantation
“The American Society of Transplantation is an international organization of professionals dedicated to advancing the field of transplantation and improving patient care by promoting research, education, advocacy, and organ donation.”
Bill of Rights for Donor Families
“This document is intended to represent the rights and legitimate expectations of families of loved ones who die and who are (or may be considered) potential organ and/or tissue donors. This document is also intended to serve as a guide for services that are (or should be) offered to such families.”
“Donate Life Hollywood is part of the national Donate Life movement with a mission of seeing more accurate and inspiring storylines about organ and tissue donation on television and in film.”
Joint Commission on Accreditation of Healthcare Organizations/Joint Commission Resources
“For more than twenty years, over 10,000 hospitals, ambulatory care facilities, laboratories, and other health care organizations around the world have turned to the Joint Commission for patient safety and quality improvement resources.”
Susan Whitman Helfgot discusses her decision to donate her husband’s tissue, which was used in a face transplant.
“The National Kidney Foundation founded the National Donor Family Council (NDFC) in 1992 as a home for donor families. With over 11,000 donor family and professional members, the Council is the largest organized group of donor families in the world, representing donors of all organs and tissues (not just kidney).”
“The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.”
National Transplant Assistance Fund (NTAF)
"NTAF helps families address financial hardships arising from uninsured medical expenses related to transplantation (solid organ, bone marrow, stem cell or tissue) and catastrophic injury (spinal cord, traumatic brain).
Established in 1983 by medical professionals, NTAF is a 501(c)(3) nonprofit organization, with headquarters in Radnor, Pennsylvania, that provides expert fundraising guidance to patients, families and communities nationwide, while offering fiscal accountability of funds raised."
North American Transplant Coordinators Organization
“NATCO, The Organization for Transplant Professionals is committed to the advancement of organ and tissue donation and transplantation.”
Organ Donor Research Consortium
The Organ Donor Research Consortium (ODRC) was created in 2010 to improve the management of organ donation through investigator-initiated research, and provide a national forum for continuing education about research methods. The ODRC aims to co-operatively develop protocols that benefit from the diverse expertise and advice of the ODRC membership. In so doing, the ODRC aims to merge scientific rigor with clinical relevance to Organ Donor Research, initially within the constraints of rapid completion potential, easy multi-OPO feasibility and affordable with limited resources. The focus of the ODRC is the development and execution of protocols which are investigator-initiated and officially affiliated with the ODRC.
“’The Power of Two’ is a feature-length, character-driven documentary in production with international implications about the importance of organ donation and transplantation, Cystic Fibrosis awareness and related health causes.” AOPO is a community partner, and a proud supporter of Anabel and Isabel Stenzel in their campaign to educate the public about organ donation.
South Eastern Organ Procurement Foundation
“The mission of The American Foundation for Donation & Transplantation (AFDT) is to enhance organ and tissue donation, recovery and transplantation through science, education and service. AFDT will continue to improve safety, well-being and outcomes for donors, patients and families.”
Transplant Recipients International Organization
“TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.”
“Transweb is a nonprofit educational web site serving the world transplant community since 1994. TransWeb features real people's experiences, the top 10 myths about donation, a donation quiz, frequently asked questions with answers, as well as educational reference and videos of U.S. and World Transplant Games. For adults and teens, TransWeb features Give Life: The Transplant Journey a multimedia trip through the donation and transplantation process.”